RARE, BUT NOT ALONE – SEEKING PEOPLE WITH EGPA

Imagine trying to find someone in a crowd equivalent to Switzerland’s largest stadium—filled six times over. It’s a challenge, but not an impossible mission.

EGPA (eosinophilic granulomatosis with polyangiitis) is a rare autoimmune disease that is one of the ANCA vasculitides. With the help of VASAS (VASculitis Association Switzerland), Fiona is looking for other people in Switzerland who, like her, live with EGPA. Why? To get in touch with others who have the same uncommon life experience or are at the beginning of it. She also wants to find out about their needs and interests with regard to the possible establishment of an EGPA patient group. Theoretically, there are around 90 to 125 people living here with EGPA.
With the above goal in mind, we are calling on other people with EGPA to complete the following survey (takes about 5 to 10 minutes). Your answers are completely anonymous, unless you wish to leave your contact details at the end (= optional).

Thank you for your time - your contribution is invaluable in building a potential EGPA community in Switzerland!

Warm regards,
Fiona and the VASAS Team